Avril Daly, CEO, Retina International and Orla Galvin, PhD, Director of Stakeholder Engagement, Retina International  

This course will provide practical guidance on why and how people living with sight loss can have a role in the development and execution of benchtop and clinical research studies. There will be a discussion of how patients and their caregivers can bring stakeholders together to address gaps in research, and the unique roles patients can play in prioritizing a research agenda – before and during clinical development.  Hear Silvia Cerolini, “Through Vicky’s Eyes”, and Allison Galloway, "Eye Love Logan", describe their experiences representing the RDH12 Families advocating and funding a research agenda for many years.