The following presenter disclosed financial relationships: David C. Musch, PhD, MPH, FARVO: Regulatory Pathways Group, Inc.: (C); Editas Medicine, Inc.: (C); University of Michigan license agreement: Glaucoma Symptom and Health Problem Checklist (SHPC-18): (P)
Patient-reported outcome (PROs) measures and measurement instruments vary depending on the ophthalmic condition, so it is important to select the most effective option for your research question. Investigators should also consider linguistic variations among the patients being studied when designing measurement tools. The speakers in this session will explain the science of PRO measurement (PROM) highlighting best practices and including how to define what you want to measure, select the appropriate PRO measure and measurement tool appropriate for the ophthalmic condition and ensure your measurement instrument is accessible to a diverse patient population. The session will end with a discussion of the intersection of PROMs and HEOR. Bring your questions for the interactive Q&A.
Session agenda
- Perspective matters: How differences in perspectives impact Patient Reported Outcome Measures (PROMs) by Bonnielin Swenor, PhD, MPH
- The science of PRO Measurement by Vijaya K. Gothwal, PhD
- Patient-Reported Outcome Measures for ophthalmic diseases and disorders by David C. Musch, PhD, MPH, FARVO
- Linguistic validation: A necessity for global PRO research by João Pedro Marques, MD, MSc, FEBO
- Introduction to Health Economics and its intersection with Patient-Reported Outcome Measurements (PROMs) by Jyoti Khadka, PhD, MPhil
- Live discussion with the presenters
