Tools for setting up a registry in age-related macular degeneration, by Dr. Anne Lynch | Building out research questions using a registry by Dr. Jennifer Patnaiik
Anne Lynch MB, BCH, BAO, MSPH, Professor of OphthalmologyDirector Division of Ophthalmic EpidemiologyDepartment of OphthalmologyUniversity of Colorado School of MedicineSecondary appointment: Colorado School of Public Health
Jennifer Patnaik, PhD Assistant Professor of Ophthalmology Lead Epidemiologist, Division of Ophthalmic Epidemiology Department of Ophthalmology University of Colorado School of Medicine Secondary appointment: Colorado School of Public Health
Description
"Tools for setting up a registry in age-related macular degeneration, by Dr. Anne Lynch"
- In this presentation, the key steps of how to set up a registry/database will be reviewed. The presentation will also discuss how to conduct quality research from an existing registry/database and the challenges associated with the use of an existing database/registry. An overview of the use of longitudinal and biomarker data will be discussed and also our experience of how to add modules to a registry in order to continue to build and advance the utility of the registry.
"Building out research questions using a registry by Dr. Jennifer Patnaik"
- Dr. Patnaik will share experience and tips on utilizing an existing registry and surveillance databases for research. Inaddition, she will focus on building upon existing registry data, with the primary focus on expanding researchpossibilities. Various options of how to expand registry databases will be discussed, in addition to key strategies ofhow to best create additional databases. She will address challenges and pitfalls experienced thus far and how tobest prepare for and problem‐solve potential issues.
