Public databases and Sponsored testing programs, by Emily Place, MS, LCGC
Emily Place, MS, LCGC. MEEI-Harvard
https://oculargenomics.meei.harvard.edu/labs/genetic-counseling/team-members/
Description
"Public databases and Sponsored testing programs, by Emily Place, MS, LCGC"
Sharing of genetic data is critical to further our understanding of mendelian disease and improve interpretation of genetic results. This talk will discuss data sharing in the different yet equally important areas of sponsored genetic testing programs and public variant databases. We will discuss aspects of each area, highlight benefits and limitation of each and discuss useful ways to share data while protecting the identity of patients.